Black women across the United States – particularly in California – experience disproportionately high rates of maternal mortality and morbidity. These risks are significantly amplified among individuals with Sickle Cell Disease or Trait (SCD/T), who face elevated chances of miscarriage, preeclampsia, preterm birth, stillbirth, and maternal death when the condition is not adequately managed. Adolescents and young adults with SCD/T also encounter unique psychosocial challenges during the transition from pediatric to adult care, especially related to reproductive decision‑making and partner selection.

The Sickle Cell Family Planning (SCFP) project seeks to reduce maternal health disparities by increasing reproductive planning and improving maternal health outcomes among people with SCD/T. Grounded in Life Course Theory and the Integrated Behavioral Model, the project employs a mixed methods, community‑based participatory research (CBPR) approach. Phase 1 qualitative research will inform a tailored reproductive health education intervention evaluated in Phase 2. Additionally, the study will develop a Perinatal Care Protocol and a Perinatal Pathway of Care in partnership with community-based organizations (CBOs). By expanding research capacity, enhancing education, and strengthening care pathways, the project aims to address longstanding gaps in reproductive and maternal health services for the SCD/T population.